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SDS Events - Global

Community Calendar

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15:00
Global SDS Family Coffee Chat
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Upcoming and Past Events

  • Global SDS Family Coffee Chat
    Global SDS Family Coffee Chat
    複数の日付
    12月08日(日)
    Virtual event
    Global SDS Family Coffee Chat
    2024年12月08日 15:00 – 17:00
    Virtual event
    Monthly virtual get-together to build community and support.
    シェア
    Registration Info
  • Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    5月19日(日)
    Virtual. Register at sdsalliance.org/cce
    Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    2024年5月19日 14:00 – 15:00 GMT-4
    Virtual. Register at sdsalliance.org/cce
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    Details
  • SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    4月13日(土)
    free virtual event
    SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    2024年4月13日 13:00 – 19:00 GMT-4
    free virtual event
    This meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
    シェア
    Details
  • POPS: Global Patient Advocacy and Partnering Summit
    POPS: Global Patient Advocacy and Partnering Summit
    5月20日(土)
    Virtual event
    POPS: Global Patient Advocacy and Partnering Summit
    2023年5月20日 10:00 – 15:00 GMT-4
    Virtual event
    The first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
    シェア
    Details
  • 10th International Congress on Shwachman-Diamond Syndrome
    10th International Congress on Shwachman-Diamond Syndrome
    4月18日(火)
    Robinson College, Cambridge, UK
    10th International Congress on Shwachman-Diamond Syndrome
    2023年4月18日 9:00 GMT-4 – 2023年4月21日 13:00 GMT-4
    Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
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    Details
  • 4e journées des neutropénies (4th French National Neutropenia Days)
    4e journées des neutropénies (4th French National Neutropenia Days)
    3月24日(金)
    Paris
    4e journées des neutropénies (4th French National Neutropenia Days)
    2023年3月24日 9:00 – 16:00 GMT+1
    Paris, Paris, France
    Nous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
    シェア
    Details
  • SickKids Canada - National MFM Virtual Patient and Family Conference
    SickKids Canada - National MFM Virtual Patient and Family Conference
    4月30日(土)
    Virtual
    SickKids Canada - National MFM Virtual Patient and Family Conference
    2022年4月30日 12:00 – 18:00 GMT-4
    Virtual
    The National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
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    Details
  • Fun-Run-Walk October 2020
    Fun-Run-Walk October 2020
    10月24日(土)
    Virtual run/walk, location of your choice
    Fun-Run-Walk October 2020
    2020年10月24日 7:00 GMT-4 – 2020年11月01日 23:00 GMT-5
    Virtual run/walk, location of your choice
    It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
    シェア
    Details
  • Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    7月12日(日)
    Camp Sunshine, Cosco, ME, USA
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    2020年7月12日 14:00 GMT-4 – 2020年7月16日 10:00 GMT-4
    Camp Sunshine, Cosco, ME, USA, Cosco, ME
    SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
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    Details
  • Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    2月29日(土)
    Painting with a Twist, North Andover, MA
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    2020年2月29日 14:00 – 17:00 GMT-5
    Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
    SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
    シェア
    Details
  • SDS Registry Family Day in Boston, MA, US
    SDS Registry Family Day in Boston, MA, US
    9月15日(日)
    Boston, MA
    SDS Registry Family Day in Boston, MA, US
    2019年9月15日 8:00 – 16:00 GMT-4
    Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
    Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
    シェア
    Details
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